DebRA of America – The mission of DebRA of America is to improve the quality of life for all people living with EB, their families, and caregivers through programs and services while funding research to find a cure and treatments for Epidermolysis Bullosa.
Butterflys & Bandages – Butterflys & Bandages is a Non Profit Organization founded to help raise funds for Epidermolysis Bullosa (EB) research and family support. Their purpose is to make a difference in the search for a cure for EB and to provide funds to support cutting edge research around the world.
I Refuse EB – I Refuse EB is dedicated to raising awareness, being a voice for those affected, promoting advocacy, and supporting the research efforts taking place at the University of Minnesota by Dr. Jakub Tolar through Pioneering Unique Cures for Kids.
Pioneering Unique Cures for Kids (PUCK) – By teaming up with the research team at the University of Minnesota, pioneers in stem cell transplantation, PUCK provides research funding to the doctors and on-the-ground local support to the patients who are together transforming an incurable disease into a curable one, a child at a time.
The Butterfly Fund – The Butterfly Fund was started because of the need to get involved & to make a difference in the lives of people who truly need it. It originated because of the need for awareness and help of those who suffer from the disease Epidermolysis Bullosa – also known as EB.